Haley

Finally getting a good routine down<3 •My TPN “tray” I find very helpful keeping me clean and organized when setting things up✨🫧💕 • • #totalparenteralnutrition #tpn #nightroutine #chronicillness #ehlersdanlossyndrome #potsawareness #chronicallyill #malabsorption #setuptpn #fypシ #trending #pjs #goodnight #asmr #notthefullprocess #trendingaudio #growtogether

Some Chick-fil-A nuggets sound so good 😭 #totalparenteralnutrition #tpn #ehlersdanlossyndrome #malabsorption #gastroparesis #potsawareness #chronicillnessawareness #chronicillness #fypシ #foryoupage #fyp #awarenessmatters #iwantchickennuggets #iwish #asmr

I hope you all had a good Saturday 💖 #totalparenteralnutrition #tpn #chronicillnessawareness #chronicillness #ehlersdanlossyndrome #gastroparesis #malabsorption #bloodclots #chronicallyill #foryoupage #fypシ #trending #trendingaudio #nightroutine #potsawareness #relatable #awarenessmatters

If you have questions about what I’m Setting Up and and a explanation:) Check out one of my recent videos I explained a lot of questions perversely asked <3 • • #totalparenteralnutrition #tpn #ehlersdanlossyndrome #gastroparesis #malabsorption #potsawareness #centealline #hickmancentralline #foryoupage #fypシ #trending #relatable #awarenessmatters #chronicillnessawareness

This song gave me flash backs to my older TikTok days 🤍 Also anyone else on TPN that know how to stop the anxiety of possible infection ever time you set it up, I’m terrified and keep getting worked up before I have to set it up. I can’t go through that again<3 any advice helps😅 #totalparenteralnutrition #tpn #nightroutine #ehlersdanlossyndrome #malabsorption #potsawareness #gastroparesis #chronicallyill #sepsis #bloodclots #trendingaudio #asmr #goodnight #itsgoingtobeokay #justbreathe #fypシ #trending

There are several reasons why a person may need TPN, so don’t think everyone that’s on TPN has the same story:) I Hope this answers a few questions! 💛#totalparenteralnutrition #tpn #ehlersdanlossyndrome #gastroparesis #malabsorption #potsawareness #chronicillnessawareness #chronicillness #question #awarenessmatters #foryoupage #fypシ #trending

#chronicillness #eveningroutine #nightroutine #medicaltiktok #chronicpain #chronicillnessawareness #TPN #totalparenteralnutrition #jfeeds #gjtube #hickmancentralline #routine #tired #fypシ #trending #malabsorption #ehlersdanlossyndrome #potsawareness #gastroparesis #awareness

If you have any questions that haven’t been answered on my other video let me know in the comments:) Also please no unsolicited medical advice, I was medically trained to do it this way and it’s what works best for me:) ❤️ #tpn #totalparenteralnutrition #ehlersdanlossyndrome #gastroparesis #malabsorption #potsawareness #chronicillnessawareness #chronicillness #hickmancentralline #centraline #getunreadywithme #fypシ #foryoupage #trending #trendingaudio #awarenessmatters

Replying to @Crystal Casper #tunneledcatheter #totalparenteralnutrition #tpn #sanitizer #septic #germx #tooclean #godforbid #getoffmybutt #imadowhatworksforme #nevertoclean #ehlersdanlossyndrome #malabsorption #potsawareness #gastroparesis #chronicallyill #sepsis #bloodclots #fypシ #trending #response

🫧 Please no unsolicited medical advice<3, * I was medically Trained to set my own TPN up<3 * No it’s not more sanitary if you use regular nursing gloves, it’s only sterile if you use sterilized gloves and you would have to use a few pairs, no my company does not supply you with sterilized gloves to set up at home TPN, it’s not protocol and isn’t mandatory where i live:) * And No, using this much hand sanitizer or cleaning isn’t going to ☠️ me, sepsis can though and I will do anything I can to make sure i keep MY Body safe💞 the videos are also edited so it doesn’t show the full process:) * I’m on TPN for many reasons I have EDS, POTS, GP, malabsorption issues, in failure to thrive and have a low weight for my hight. TPN is getting absorbed into my bloodstream so my body can absorb all the calories and nutrients I need to survive and get my body out of starvation mode<3 @Versed Skin @Lissy Skincare @La Roche-Posay @byoma #nightroutine #totalparenteralnutrition #tpn #ehlersdanlossyndrome #gastroparesis #chronicallyill #potsawareness #septic #bloodclots #relatable #relatable #fypシ #trending#trendingaudio #awarenessmatters

@byoma @Versed Skin @Lissy Skincare @LaRochePosayUS @Grande Cosmetics @The Ordinary #totalparenteralnutrition #tpn #nightroutine #ehlersdanlossyndrome #potsawareness #pjs #goodnight #chronicallyill #malabsorption #trendingaudio #growtogether #itsgoingtobeokay #justbreathe #faith #trusttheprocess #relatable #fypシ #trending #byomaskincare #lissyskincare

I Apologize for such repetitive content lately! My symptoms have been flaring and I haven’t had much energy<3 I promise I will post more when I’m less symptomatic <3 plus i always record myself setting it up because i can make sure i did everything correctly and watch it over for peace of mind, this video is very edited down so it doesn’t show all my steps🤍 #totalparenteralnutrition #tpn #ehlersdanlossyndrome #gastroparesis #malabsorption #chronicillnessawareness #chronicillness #nightroutine #potsawareness #relatable #awarenessmatters #handsanitizer #foryoupage #fypシ #trending #trendingaudio

Let’s make dinner 😮‍💨 #totalparenteralnutrition #tpn #ehlersdanlossyndrome #gastroparesis #malabsorption #chronicillnessawareness #chronicillness #nightroutine #potsawareness #relatable #awarenessmatters #handsanitizer #foryoupage #fypシ #trending #trendingaudio #setuptpn

Now girls let’s be honest what you like more the blonde or the brown 😭💛#hair #blondeorbrunette #idk #missingmyblondehair #helpchooseplease

Now I just need to find a gallon lol #trending #fypシ #totalparenteralnutrition #trendingaudio #chronicillness #humor #handsanitizer #ehlersdanlossyndrome #chronicallyill #funny #relatable

Day in my life 😊🤍 • @LaRochePosayUS @Kristin Ess Hair #dayinmylife #tpn #totalparenteralnutrition #ehlersdanlossyndrome #gastroparesis #malabsorption #potsawareness #centealline #hickmancentralline #getready #spendthedaywithme #foryoupage #fypシ #trending #relatable #awarenessmatters

✨🖤#trending #isntlifebeautiful #fypシ #trendingaudio

#rash #chronicillness #undiagnosed #advice #help #ehlersdanlossyndrome #potsawareness #chronicallyill #chronicillnessawareness #fypシ

@Vaseline I promise my hands aren’t gonna fall off because of how dry they get from hand sanitizer 😮‍💨💙 #chronicillness #totalparenteralnutrition #tpn #chronicillnessawareness #ehlersdanlossyndrome #gastroparesis #malabsorption #bloodclots #chronicallyill #foryoupage #fypシ #trending #nightroutine #potsawareness #handsanitizer

I swear I have energy for about an hour, I keep sleeping so much and still feel so exhausted! I didn’t think recovery from sepsis and my blood clots would be this much on my body🤍 so again i apologize for the same content i really want to get back into my regular content and routine but it just has been taking a little bit 💞 #tpn #totalparenteralnutrition #ehlersdanlossyndrome #gastroparesis #malabsorption #potsawareness #chronicillnessawareness #chronicillness #hickmancentralline #centealline #relatable #getunreadywithme #fypシ #foryoupage #trending #trendingaudio #awarenessmatters